Tools
ME/CFS Research Tools
mapMECFS
mapMECFS is a dynamic, searchable interface of a comprehensive data set of experimental results from studies focused on ME/CFS. The interactive data portal allows registered users to quickly search research results across biological disciplines, upload their results to the site, and integrate their data with other publicly available results. The goal of mapMECFS is to provide a platform that allows investigators to search and access data from across a wide range of biological and clinical studies on ME/CFS enabling a broader view of published research and to facilitate data sharing and discovery.
searchMECFS
searchMECFS is an interactive online search tool for identifying and requesting biospecimens and clinical data for ME/CFS research. It facilitates the use of biospecimens for research on ME/CFS by using the study participants' demographic and clinical characteristics to identify specific biospecimens available for research purposes. The tool also enables researchers to determine biospecimen availability and helps initiate the process of applying for access to biospecimens to be used in research studies. Currently, searchMECFS provides access to data and biospecimens from the Chronic Fatigue Initiative (CFI) epidemiology study. The long-term goal is to add additional ME/CFS datasets and biospecimens to optimize the use of these valuable resources and advance the understanding of ME/CFS and its underlying biological mechanisms.
UK ME/CFS Biobank
The UK ME/CFS Biobank stores over 30,000 aliquots of blood samples and data generously donated by >600 donors including people living with mild/moderate and severe ME/CFS, with multiple sclerosis (MS), and healthy controls. Participants with ME/CFS have longitudinal samples at up to 6 timepoints.
More details on sample types and the accompanying data available can be found on the website.
If you would like to apply for samples free of all costs of collection, processing and storage, please send a brief outline for a research proposal to the Biobank. Full details for applications are on the website. These free samples are available for a limited time only. The UK ME/CFS Biobank was supported by NIH grant R01AI103629.Learn More
ME/CFS Research Worldwide
Clinical Studies
Search for ME/CFS on ClinicalTrials.gov or choose your own search term.
Published Research
Search for ME/CFS on PubMed or choose your own search term.
Grants that fund MECFSnet are managed by the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases and the National Institute of Neurological Disorders and Stroke. This website was supported by a grant from NIH, grant #U24-NS-105535.
Website design and development by RTI International. RTI is a registered trademark and trade name of Research Triangle Institute. The RTI logo is a registered trademark of Research Triangle Institute.
What is ME/CFS?
Myalgic Encephalomyelitis (ME), also referred to as Chronic Fatigue Syndrome (CFS), is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, and energy metabolism systems.
