Many events have been postponed or canceled due to COVID-19. We will update this page as more information is provided about the events. We will continue to monitor ME/CFS news and events and will update this page regularly.
ME/CFS Can Affect Anyone
Millions of people worldwide are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Yet the causes, diagnostic markers, progression, and FDA-approved treatments remain unknown. The shared vision of the ME/CFS Collaborative Research Network (ME/CFSnet) is to encourage collaborative research in partnership with individuals and advocacy groups to understand the disease and develop better diagnosis and treatment.
NEWS
New ME/CFS Clinician Coalition Website
October 21, 2020
The ME/CFS Clinician Coalition is composed of internationally recognized experts on ME/CFS, some of whom are involved in the NIH-funded Collaborative Research Centers. The Coalition website targets medical providers and includes resources on the diagnosis and management of ME/CFS, links to CMEs and other educational materials, and links to other important resources including comorbidities, key reports, and research sites. For more information, access the ME/CFS Clinician Coalition website.
Take Me ThereNEWS
New Publication! MECFS Network Investigators Profile Cytokines in Extracellular Vesicles in People with ME/CFS
October 12, 2020
New findings published in the Journal of Translational Medicine characterize disturbances in cytokine networks in both plasma and extracellular vesicles and provide further evidence of immune dysregulation in ME/CFS.
Take Me ThereNEWS
Fourth Annual NIH ME/CFS Research Meeting
October 6-7, 2020
Cornell-Ithaca hosted the 4th Annual NIH ME/CFS Research Network meeting. The gathering included members from the four research centers, Columbia's Center for Solutions for ME/CFS, Cornell's ME/CFS Collaborative Research Center, the Interdisciplinary Canadian Collaborative ME Research Network, the Jackson Laboratory's ME/CFS Collaborative Research Center, and the Data Management and Coordination Center, RTI International. Representatives from the NIH, including NINDS director Dr. Walter Koroshetz, participated in the meeting. Joining the group were partner advocates from MEAction, the New Zealand ME Association, and the Solve ME/CFS Initiative, and included individual advocates from an experienced and diverse background.
The Network met on Zoom for over 13 hours. During this time, participants heard from over 30 speakers that were part of 8 scientific sessions, where unpublished and preliminary data was presented. The meeting included a collaborative community engagement panel. Each day had almost 100 individuals join to hear about research progress made on topics such as biomarkers, immune cell and patient phenotyping, metabolomics, metabolism, and data integration. Although the meeting was held virtually due to COVID-19, the gathering proved to be a successful platform to share research progress, collaborate, and engage with the community.
These institutions are working together as the ME/CFS Research Network.
Visit the CDC to learn more about ME/CFS.
Collaboration Drives Progress
Investigators, health care providers, and advocates are collaborating across the Research Network to drive progress in understanding ME/CFS. Together, we can advance discoveries to improve the lives of members of the ME/CFS community.
Grants that fund MECFSnet are managed by the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases and the National Institute of Neurological Disorders and Stroke. This website was supported by a grant from NIH, grant #U24-NS-105535.
Website design and development by RTI International. RTI is a registered trademark and trade name of Research Triangle Institute. The RTI logo is a registered trademark of Research Triangle Institute.
What is ME/CFS?
Myalgic Encephalomyelitis (ME), also referred to as Chronic Fatigue Syndrome (CFS), is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, and energy metabolism systems.