ME/CFS Can Affect Anyone

Millions of people worldwide are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Yet the causes, diagnostic markers, progression, and FDA-approved treatments remain unknown. The shared vision of the ME/CFS Collaborative Research Network (ME/CFSnet) is to encourage collaborative research in partnership with individuals and advocacy groups to understand the disease and develop better diagnosis and treatment.


CDC ME/CFS Stakeholder Engagement and Communication (SEC) Conference Call

December 6, 2022

Elizabeth Unger, PhD, MD, Branch Chief of the CDC's Chronic Viral Diseases Branch will provide an update. Guest speaker David M. Systrom, Jr., MD, Brigham and Women's Hospital and Assistant Professor of Medicine at Harvard School of Medicine, will present on the Neurovascular Dysregulation Underlies Exercise Intolerance in ME/CFS.

The conference call will begin at 3:00 pm ET.

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MECFS Network Investigator Presents Metabolomics Findings at IACFS/ME's Virtual Journal Club

October 14, 2022

Dr. Arnaud Germain discusses his work comparing metabolites in people affected by ME/CFS with healthy people during and after 2-day cardiopulmonary exercise testing. Significant differences were found in metabolites between groups during the recovery period and between male and female study participants. These findings were published in JCI Insight. A recording of the meeting is available below.

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New Publication! Lessons Learned from ME/CFS Can Inform Long-COVID Diagnosis and Treatment

October 10, 2022

A new paper authored by members of the MECFS Network Community Advisory Committee explores three decades of ME/CFS research and how it can inform Long-COVID diagnosis and treatment. These findings were published in Fatigue: Biomedicine, Health & Behavior.

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A Network to Unite

These institutions are working together as the ME/CFS Research Network.

Visit the CDC to learn more about ME/CFS.

Join the Quest for Discoveries

The experience and expertise of every individual helps provide a better understanding of ME/CFS. Learn more about how you can become a part of this collaborative effort.

Collaboration Drives Progress

Investigators, health care providers, and advocates are collaborating across the Research Network to drive progress in understanding ME/CFS. Together, we can advance discoveries to improve the lives of members of the ME/CFS community.

Grants that fund MECFSnet are managed by the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases and the National Institute of Neurological Disorders and Stroke. This website was supported by a grant from NIH, grant #U24-NS-105535.

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What is ME/CFS?

Myalgic Encephalomyelitis (ME), also referred to as Chronic Fatigue Syndrome (CFS), is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, and energy metabolism systems.