ME/CFS Can Affect Anyone
Millions of people worldwide are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Yet the causes, diagnostic markers, progression, and FDA-approved treatments remain unknown. The shared vision of the ME/CFS Collaborative Research Network (ME/CFSnet) is to encourage collaborative research in partnership with individuals and advocacy groups to understand the disease and develop better diagnosis and treatment.
EVENT
Massachusetts ME/CFS & FM Association's Annual Meeting
October 23, 2021
This online event is brought to you by the Massachusetts ME/CFS and FM Association in Partnership with the National Institutes of Health. Three MECFS Network investigators and a partner will present at the meeting: Dr. W. Ian Lipkin, Dr. Derya Unutmaz, Dr. Maureen Hanson, and Dr. Lucinda Bateman. Dr. Avindra Nath, from NIH, will also present.
The meeting, Advances in Our Understanding of ME/CFS and the Effects of Long COVID, will convene on October 23, from 12:30-4:00 p.m.
Please visit to register: https://www.massmecfs.org/component/civicrm/?task=civicrm/event/register&reset=1&id=64
Take Me ThereEVENT
NIH ME/CFS Advocacy Call
October 22, 2021
The NIH ME/CFS Advocacy call will convene on October 22, 2021 at 3:00 p.m.
Meeting passcode: 816676
Join the webinar: https://nih.zoomgov.com/j/1616894211?pwd=ZUlYdld1UHBEYStzU2JiTHZFRDc1UT09
Take Me ThereEVENT
Beyond the Symptom: The Biology of Fatigue
September 27-28, 2021
This virtual workshop is a joint effort of the National Institutes of Health (NIH) Blueprint for Neuroscience Research Program and the Sleep Research Society. The objective of the workshop is to go beyond the symptom of fatigue and dive into mechanisms. Presenters will discuss how fatigue is described and measured across diseases, with the goal of identifying common features of fatigue. Presenters will also describe theories and approaches to understand biological mechanisms of fatigue.
Three MECFS Network investigators will present at the workshop: Dr. Maureen Hanson, Dr. Betsy Keller, and Dr. Ian Lipkin. Dr. Anthony Komaroff will moderate.
The workshop will convene from 10:00 am – 6:00 pm.
Take Me ThereThese institutions are working together as the ME/CFS Research Network.
Visit the CDC to learn more about ME/CFS.
Collaboration Drives Progress
Investigators, health care providers, and advocates are collaborating across the Research Network to drive progress in understanding ME/CFS. Together, we can advance discoveries to improve the lives of members of the ME/CFS community.
Grants that fund MECFSnet are managed by the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases and the National Institute of Neurological Disorders and Stroke. This website was supported by a grant from NIH, grant #U24-NS-105535.
Website design and development by RTI International. RTI is a registered trademark and trade name of Research Triangle Institute. The RTI logo is a registered trademark of Research Triangle Institute.
What is ME/CFS?
Myalgic Encephalomyelitis (ME), also referred to as Chronic Fatigue Syndrome (CFS), is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, and energy metabolism systems.