ME/CFS Can Affect Anyone

Millions of people worldwide are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Yet the causes, diagnostic markers, progression, and FDA-approved treatments remain unknown. The shared vision of the ME/CFS Collaborative Research Network (ME/CFSnet) is to encourage collaborative research in partnership with individuals and advocacy groups to understand the disease and develop better diagnosis and treatment.


NIH ME/CFS Advocacy Call

August 26, 2022

The NIH ME/CFS Advocacy call will convene on August 16, 2022 at 3:00 p.m.

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New Publication! You + ME Registry and Symptom Tracking App Support Clinical and Therapeutic Discoveries for ME/CFS

August 18, 2022

New findings published in JMIR Research Protocols describe the protocol for the You + ME Registry and presents preliminary results on participant enrollment and satisfaction. The development of the registry and mobile app was supported in part by an National Institutes of Health grant as part of the ME/CFS Collaborative Research Network.

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2022 IACFS/ME Clinical and Scientific Conference

July 27-30, 2022

Mark your calendars for the International Scientific Conference to be held at Stony Brook University in Stony Brook, New York, USA. This will be IACFS/ME's 15th Scientific Conference! The call for abstracts/workshop proposals is anticipated for mid-January.

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A Network to Unite

These institutions are working together as the ME/CFS Research Network.

Visit the CDC to learn more about ME/CFS.

Join the Quest for Discoveries

The experience and expertise of every individual helps provide a better understanding of ME/CFS. Learn more about how you can become a part of this collaborative effort.

Collaboration Drives Progress

Investigators, health care providers, and advocates are collaborating across the Research Network to drive progress in understanding ME/CFS. Together, we can advance discoveries to improve the lives of members of the ME/CFS community.

Grants that fund MECFSnet are managed by the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases and the National Institute of Neurological Disorders and Stroke. This website was supported by a grant from NIH, grant #U24-NS-105535.

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What is ME/CFS?

Myalgic Encephalomyelitis (ME), also referred to as Chronic Fatigue Syndrome (CFS), is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, and energy metabolism systems.