Many events have been postponed or canceled due to COVID-19. We will update this page as more information is provided about the events. We will continue to monitor ME/CFS news and events and will update this page regularly.
ME/CFS Can Affect Anyone
Millions of people worldwide are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Yet the causes, diagnostic markers, progression, and FDA-approved treatments remain unknown. The shared vision of the ME/CFS Collaborative Research Network (ME/CFSnet) is to encourage collaborative research in partnership with individuals and advocacy groups to understand the disease and develop better diagnosis and treatment.
NEWS
New Publication! MECFS Network Investigators Use NASA Lean Test to Demonstrate Circulatory Decompensation in Subset of People with ME/CFS.
August 15, 2020
New findings published in the Journal of Translational Medicine present evidence that the 10-minute NASA Lean Test can be used to help diagnose ME/CFS in people who have been sick with ME/CFS for less than four years. The test can also inform management and treatment of orthostatic intolerance.
Take Me ThereEVENTS
Interagency ME/CFS Working Group Meeting
August 11, 2020
The first meeting of the Interagency ME/CFS Working Group Meeting will take place as a virtual meeting on August 11, 2020 from 3:00 – 5:00 pm EDT. Information about the meeting and the link for the webcast is: https://videocast.nih.gov/watch=38201.
All ME/CFS stakeholders are invited to participate via webcast and to provide questions for the group via email prior to the August 11th meeting.
Take Me ThereNEWS
New Publication! MECFS Network Investigators Analyze Plasma Proteomes to Identify Potential MECFS Biomarkers
July 21, 2020
The results of a proteomics study by the Center for Solutions for ME/CFS was published by the journal PLoS ONE. The study suggests there is a distinctive "signature" of a small group of proteins (proteomes) that distinguishes people with ME/CFS from healthy people. These study findings highlight the potential use of the plasma proteome as a source of biomarkers for ME/CFS.
Take Me ThereThese institutions are working together as the ME/CFS Research Network.
Visit the CDC to learn more about ME/CFS.
Collaboration Drives Progress
Investigators, health care providers, and advocates are collaborating across the Research Network to drive progress in understanding ME/CFS. Together, we can advance discoveries to improve the lives of members of the ME/CFS community.
Grants that fund MECFSnet are managed by the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases and the National Institute of Neurological Disorders and Stroke. This website was supported by a grant from NIH, grant #U24-NS-105535.
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What is ME/CFS?
Myalgic Encephalomyelitis (ME), also referred to as Chronic Fatigue Syndrome (CFS), is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, and energy metabolism systems.