ME/CFS Can Affect Anyone

Millions of people worldwide are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Yet the causes, diagnostic markers, progression, and FDA-approved treatments remain unknown. The shared vision of the ME/CFS Collaborative Research Network (ME/CFSnet) is to encourage collaborative research in partnership with individuals and advocacy groups to understand the disease and develop better diagnosis and treatment.

EVENT

International ME/CFS Conference 2026

April 22, 2026

This two-day hybrid event will convene on May 7 to May 8, 2026, in Berlin, Germany. The conference will provide the latest findings from research on disease mechanisms and insights from clinical trials investigating treatments for ME/CFS and post-COVID syndrome.

Take Me There

EVENT

4th Long COVID International Conference 2026

April 22, 2026

The 4th edition of the Long COVID International Conference will be held on November 12-13, 2026, in Nice, France. This conference aims to raise awareness, clarify misconceptions, promote understanding, and stimulate discussion amongst healthcare professionals, investigators, policymakers, and community representatives on the clinical manifestations, management, plausible preventive and therapeutic options, and public health challenges related to Long COVID.

Take Me There

EVENT

Invest in ME Research (IIMEC18)

April 22, 2026

IMEC18 will bring together a distinguished group of researchers, clinicians, and patient advocates to share knowledge and foster collaboration in the village of Hinxton Hall, United Kingdom, on May 29, 2026. The event will feature updates from the BRMEC15 colloquium, alongside presentations and discussions that highlight recent advancements in ME research and Long COVID.

Take Me There

A Network to Unite

These institutions are working together as the ME/CFS Research Network.

Visit the CDC to learn more about ME/CFS.

Join the Quest for Discoveries

The experience and expertise of every individual helps provide a better understanding of ME/CFS. Learn more about how you can become a part of this collaborative effort.

Collaboration Drives Progress

Investigators, health care providers, and advocates are collaborating across the Research Network to drive progress in understanding ME/CFS. Together, we can advance discoveries to improve the lives of members of the ME/CFS community.

Grants that fund MECFSnet are managed by the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases and the National Institute of Neurological Disorders and Stroke. This website was supported by a grant from NIH, grant #U24-NS-105535.

Logo for National Institute of Health (NIH)

Website design and development by RTI International. RTI is a registered trademark and trade name of Research Triangle Institute. The RTI logo is a registered trademark of Research Triangle Institute.

Logo for RTI International

What is ME/CFS?

Myalgic Encephalomyelitis (ME), also referred to as Chronic Fatigue Syndrome (CFS), is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, and energy metabolism systems.