ME/CFS Can Affect Anyone

Millions of people worldwide are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Yet the causes, diagnostic markers, progression, and FDA-approved treatments remain unknown. The shared vision of the ME/CFS Collaborative Research Network (ME/CFSnet) is to encourage collaborative research in partnership with individuals and advocacy groups to understand the disease and develop better diagnosis and treatment.

EVENT

Invest in ME Research International Conference Week | May 26-30, 2025

May 26, 2025

Save the date! The international ME conference week events are planned for May 26-30, 2025. More details will be forthcoming over the next months.

Take Me There

EVENT

NIH ME/CFS Advocacy Call | January 2025

January 14, 2025

NIH's next ME/CFS Webinar will be held on January 14, 2025 from 2:00 – 3:00 pm ET. The webinar will include updates from NIH on ME/CFS-related research activities and a presentation by Vikram Chib, PhD, and Agostina Casamento-Moran, PhD, from Johns Hopkins University. Click below to register.

Take Me There

NEWS

New Publication! New Research Finds T Cell Exhaustion in ME/CFS

December 2, 2024

New research from MECFSnet investigators finds T cell exhaustion as a hallmark of ME/CFS using multiomic analysis. These findings may provide the basis for future therapeutic approaches. This study was published in PNAS.

Take Me There

A Network to Unite

These institutions are working together as the ME/CFS Research Network.

Visit the CDC to learn more about ME/CFS.

Join the Quest for Discoveries

The experience and expertise of every individual helps provide a better understanding of ME/CFS. Learn more about how you can become a part of this collaborative effort.

Collaboration Drives Progress

Investigators, health care providers, and advocates are collaborating across the Research Network to drive progress in understanding ME/CFS. Together, we can advance discoveries to improve the lives of members of the ME/CFS community.

Grants that fund MECFSnet are managed by the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases and the National Institute of Neurological Disorders and Stroke. This website was supported by a grant from NIH, grant #U24-NS-105535.

Logo for National Institute of Health (NIH)

Website design and development by RTI International. RTI is a registered trademark and trade name of Research Triangle Institute. The RTI logo is a registered trademark of Research Triangle Institute.

Logo for RTI International

What is ME/CFS?

Myalgic Encephalomyelitis (ME), also referred to as Chronic Fatigue Syndrome (CFS), is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, and energy metabolism systems.